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X-WR-CALDESC:Events for BSGCT
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DTSTART:20250101T000000
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DTSTART;TZID=UTC:20261014T183000
DTEND;TZID=UTC:20261014T193000
DTSTAMP:20261007T113240Z
CREATED:20261002T144806Z
LAST-MODIFIED:20261007T113240Z
UID:10000014-1792002600-1792006200@bsgct.org
SUMMARY:BSGCT PPE Talk - Together for BPAN
DESCRIPTION:Virtual Only via Zoom \nREGISTRATION IS FREE \nBSGCT Invites you to our next Public and Patient Engagement (PPE) talk. \nThree Charities. One Shared Mission. \nOur Speakers \nAction for BPAN – UK\nA UK charity dedicated to raising awareness\, supporting families\, and funding research into treatments and a cure for BPAN.\nKelly Sayers — Co-Founder & President\nNicole Harper — Co-Founder & Secretary \nBPAN Matters – Spain\nA Spain-based organisation focused on raising BPAN awareness\, supporting affected families\, and advancing research into potential treatments.\nCelia Davó Siguero — Co-Founder & President\nEnrique Sevillano Bravo — Co-Founder & Secretary \nBPAN Heroes – Greece\nA Greek BPAN association created by families affected by the condition\, focused on awareness\, research support\, and international collaboration.\nNadia Tziola — Co-Founder\nMichalis Kouziakis — Co-Founder \nRegister Here. The joining link will be sent to you following registration.
URL:https://bsgct.org/event/bsgct-ppe-talk-together-for-bpan/
CATEGORIES:Online Seminars,Patient and Public Engagement
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